Topic 1: Disease symptoms and daily impacts that matter most to
1) Of all the symptoms that you experience because of your condition,
which 1-3 symptoms have the most significant impact on your life?
(Examples may include chronic pain, fatigue, difficulty concentrating, sleep
2) Are there specific activities that are important to you but that you cannot do at all or as fully as you would like because of your condition? (Examples of
activities may include sleeping through the night, daily hygiene, driving,
household chores, etc.)
a) How do your symptoms and their negative impacts affect your daily
life on the best days? On the worst days?
3) How have your condition and its symptoms changed over time?
a) Do your symptoms come and go? If so, do you know of anything
that makes your symptoms better? Worse?
4) What worries you most about your condition?
Topic 2: Patients’ perspectives on current approaches to treating
1) What are you currently doing to help treat your condition or its
symptoms? (Examples may include prescription medicines,
over-the-counter products, and other therapies including non-drug
therapies such as exercise.)
a) What specific symptoms do your treatments address?
b) How has your treatment regimen changed over time, and why?
2) How well does your current treatment regimen treat the most
significant symptoms of your disease?
a) How well do these treatments improve your ability to do specific
activities that are important to you in your daily life?
b) How well have these treatments worked for you as your condition
has changed over time?
3) What are the most significant downsides to your current treatments
, and how do they affect your daily life? (Examples of downsides may
include bothersome side effects, going to the hospital for treatment,
restrictions on driving, etc.)
4) What specific things would you look for in an ideal treatment for